On 18th February 2020, Jana Popova, EAMDA EC member, attended the EURORDIS Black Pearl Awards. The event was organized to celebrate the work of decision makers, scientists, patients advocates and volunteers. This was unique opportunity to exchange experience and to establish cooperation with many important figures in the field of rare diseases. The evening ended with ceremony, which acknowledges different policy makers, scientists and patient advocates. This year Jana is the recipient of the Black Pearl Award in the category of Young Patient Advocate. EAMDA would like to congratulate the awards to all winners!
