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Latest news
Coronavirus (COVID-19) information for people with NMD
News
As there are currently no guidelines available for people with NMD on Coronavirus (COVID-19), we would like to share some general information on the disease with focus on some NMD specific diseases. People with special health care needs, especially…
Jana Popova is the recipient of the EURORDIS Black Pearl Award 2020
Uncategorized
On 18th February 2020, Jana Popova, EAMDA EC member, attended the EURORDIS Black Pearl Awards. The event was organized to celebrate the work of decision makers, scientists, patients advocates and volunteers. This was unique opportunity to exchange…
Successful EAMDA 7th EC
Uncategorized
At the seaside of Slovenia coast, rehabilitation center Dva topola hosted the EAMDA 7th EC meeting between 18th and 20th October, 2019. Besides executive committee members presented, we had an honor to host respected guests from European Federation…