International Conference on NMD 2022 (virtual)
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SMA NFT Gallery
SMA Awareness NFT Art Gallery by EAMDA: My SMA Journey
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ERN on priorities and contra-indications for COVID-19 vaccinations

European Reference Networks (ERNs) is formed by experts in rare diseases. All ERNs provided their opinion on the priorities and contraindications for patients with a rare disease within their network. The results are summarized in this document…
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WHO: Clinical management of COVID-19

This guidance document is intended for clinicians caring for COVID-19 patients during all phases of their disease (i.e. screening to discharge). This update has been expanded to meet the needs of front-line clinicians and promotes a multi-disciplinary…
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Manifesto on the importance of vaccination for patients with chronic conditions

The European Patients’ Forum, an umbrella organisation representing 72 member organisations across the European Union, calls on policymakers and other stakeholders to take into account the importance of vaccination for patients with chronic…
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